At the end of the day we just sat there and said:
"Well, that was a wonderful, wonderful day"
"Yes, wasn't it?"
We didn't need anything, but Mum wanted to go shopping nonetheless, and while we had all the staples I wasn't excited about lunch, so I made a special event of getting pizza. Todays list was: PIZZA. Mum came back with two pizzas and we had American-style for lunch and Italian for dinner, and we both agreed they were great, we had half each, her appetite has gone through the roof.
Mum very much likes the man from Crossroads, who organise home-visits. He comes for four hours every week, much longer than Mum often wants to spend with one person.
When he arrived today me and Mum were having a Jam, she was playing the black-notes on the piano, and I had tuned the guitar life this:
D# - A# - D# - D# - A# - D#
D# - A# - D# - D# - A# - D#
This is useful, because anything you play will be in tune, provided the keyboard player only plays the back keys, the guitar player can play just open strings, but to get something more melodic they can fret any of the strings on the 3rd and 5th frets. This is a minor pentatonic scale in D#, so it useful to know that D# is the root note. This was an idea I had when I was working in education with adults with learning difficulties, I'm sure loads of people use this and similar techniques. If I've lost you you can just skip the next few paragraphs as its a bit of technical manual for making playing tonal music as easy and accessible as possible.
In the following, anything the musicians do will be in tune - provided the keyboard player only uses the white keys and the guitar player plays only open strings (for a drone) and frets only the 2nd, 3rd or 5th frets on any string (to introduce more melody).
D - A - D - D - A - D
D - A - D - D - A - D
I tend to think of that one as being in Am, but the proponderence of 4th notes, Ds, on the guitar means it is gives it a very different sound to a tuning of
A - D - A - A - D - A,
a less typical tuning, but makes for a more ordinary Am key.
A - D - A - A - D - A,
a less typical tuning, but makes for a more ordinary Am key.
If you want play in a major key tune the guitar
C - G - C - C -G - C,
the keyboard player uses only the white notes, and the guitar player can play open strings or fret any of the strings on the 3rd or 5th frets, the sixth too.
C - G - C - C -G - C,
the keyboard player uses only the white notes, and the guitar player can play open strings or fret any of the strings on the 3rd or 5th frets, the sixth too.
Before I move on I'll just mention that the best way to introduce this to an inexperienced or an individual with mental or motor impairments to start with the guitar player experimenting without fretting any of the strings - they can strum them, picks them, drum on them, drop a bouncing ball on them, everything will be in tune. The majority of the expression in guitar playing comes from how the strings are struck.
He said he played some guitar, but would prefer to do some drawing. I recently bought a lightbox (a box with four bulbs underneath, which enables you to trace an image using ordinary paper). I'm sure I will use it myself, but I really bought it for Mum, as she wasn't enjoying unguided art as much as she used to - there is so much to think about - whereas she is very proud of her duck montages in the kitchen, she often shows them to visitors. She got me to admire them many times myself early on, they are an ingenious blend of watercolour and bits of duck wallpaper.
These are the images they traced using the lightbox, Mum is going to add colour to hers (the teddy bears).
I meant to have a rest while they were out shopping. I was hung over, and barely slept two nights ago, partly because I mucked up the central heating and didn't realise 'til too late, & partly because the neighbours have got their washing machine on the other side of the wall from me. They wash their clothes at night, apparently because the electricity is cheaper then. I offered to pay them the money and they looked at me as if I was mad. Is sleep not valuable? The kind lady upstairs asked us not to use our washing machine at night, I thought it a perfectly reasonable request, even if she is A BIT DEAF.
As I am about to slightly digress at this point, I would like to make it clear that Alzheimer's is, in essence, a progressive learning difficulty, namely 'unlearning EVERTHING made easy'. I spent hundreds of hours working with people with people with a broad range of abilites, including one or two who with dementia in one form or another. I took the brunt of the responsibility for their training in the inner-city open access IT Training centre I used to work in, at a further education college in South London, because I'm patient and analytical - I don't get frustrated when someone can't get it, I'm interested to get inside their mind and see if there is a way they can get it. And if there isn't one I am interested in how to make their experience in the centre as enjoyable, life-enhancing and confidence building as possible.
At the time my ex-partner, Sarah, was tutoring Performance Arts at Lewisham College, and co-tutoring a music class at Morley College, also for adults with leaning difficulties. I became involved in helping her develop the course content, and came in at the end of her courses to organise an end-of-term DVD, so that all the student's could take away a nicely produced record of what they had developed in class.
Art IS great therapy, everyone should do it. There were arguments blowing around about how worthwhile mine and Sarah's endeavours really were. The IT drop-in centre was largely funded and rated on turnover and results, so the students I championed were an economic burden on the centre, though they did demonstrate inclusivity to the inspectors. We really didn't have appropriate courseware for the most severely affected students.
Whether Sarah's more severely disabled students could absorb much information wasn't the point, the courses were vocationally oriented, and the students not only enjoyed her courses but they developed their confidence, self-esteem and social skills. Sarah's favourite success story from these times was teaching a deaf girl to sing, mine was a girl who had said she had always thought she was stupid and would never be able to learn any maths before she met me.
I had been planning on using some of these skills with Mum, but she seems more open to suggestions at the moment, she seems to be significantly more social, and less satisfied with doing the same things all the time, she is expressing a far greater desire for variety, this could well be related to the anti-depressant. And, as I spend most of my own time in creative pursuits, it is amazing luck that the weekly visitor from Crossroads enjoys art and is far better at drawing than I am.
After he left Mum began finding useless things about the house and throwing them away, which was a gratifying sight, as they were the very same useless things she had picked out of bins days before, utterly enchanted with them.
Unfortunately it is clearly hard to separate the positive effect of these artistic pursuits from the Mirtazapine anti-depressant.
I didn't get time to do an entry yesterday. She had a nice time at the shops with a friend who visits, but was soon restless and hankering for something different to do. She came up with the idea of visiting some local friends herself. Its very rare for her to come up with ideas outside of her usual routine, so this was also gratifying - unfortunately the friends weren't in, but she went for along walk anyway. Again it is hard to tell whether the extreme restlessness and unusual strong desire for novel experiences were due to her being unable to garden or the Mirtazapine, I suspect it was a combination of the two.
Mum was over the moon when a bird-house hot water bottle arrived in the post for her today (she has four or five bird-houses/feeders, bats etc, and is a big fan of hot water bottles). Shes not using it now though, she said it was more for daytime use as it was a little small - so I might go and fill it up and christen it myself.
Goodnight, wasn't it a wonderful day?
Why? What happened?
I forget
what baffled me
ADD END UM
What a noble, inspiring tale of a Bodhisattva! By appending this tale I have defintely diverged too far from my non-existent brief. I know this, but nobody reads this do they?
Haha
ADD END UM
"Christina the Astonishing", Wikipedia (not always 100% reliable, but truly democratising the organisation of the sum total of our assembled knowledge)
Born a peasant, Christina was orphaned at 15. When she was 21 (22 according to some sources), she is said to have suffered a massive seizure. According to the story, her condition was so severe that witnesses assumed she had died. A funeral was held, but during the service, she "arose full of vigor, stupefying with amazement the whole city of St. Trond, which had witnessed this wonder." Then, "The astonishment increased when they learned from her own mouth what had happened to her after her death."
She related that she had witnessed heaven, hell, and purgatory. It is written that she said "As soon as my soul was separated from my body and was received by angels who conducted it to a very gloomy place, entirely filled with souls" where the torments there that they endured "appeared so excessive" that it was "impossible to give an idea of their rigor."
She continued,"I saw among them many of my acquaintances" and touched deeply by their sad condition asked if this was Hell, but was told that it was Purgatory. Her angel guides brought her to Hell where again she recognized those she had formerly known. Next she was transported to Heaven, "even to the Throne of Divine Majesty" where she was "regarded with a favorable eye" and she experienced extreme joy and these words were spoken to her, " Assuredly, My dear daughter, you will one day be with Me. Now, however, I allow you to choose, either to remain with Me henceforth from this time, or to return again to earth to accomplish a mission of charity and suffering. In order to deliver from the flames of Purgatory those souls which have inspired you with so much compassion, you shall suffer for them upon earth: you shall endure great torments, without however dying from their effects. And not only will you relieve the departed, but the example which you will give to the living, and your continual suffering, will lead sinners to be converted and to expiate their crimes. After having ended this new life, you shall return here laden with merits."
What a noble, inspiring tale of a Bodhisattva! By appending this tale I have defintely diverged too far from my non-existent brief. I know this, but nobody reads this do they?
Haha